Shine the Light on Sickle Cell is organized by SiNERGe (Sickle Cell improvement in the NorthEast ReGion through education) Community-Based Organizations.  Shine the Light is supported by the Health Resources and Services Administration (HRSA) as part of the Sickle Cell Disease Treatment Demonstration Project.  For more information, visit HRSA.gov.

Members of the 2025 Planning Committee for Shine the Light are:

Chair, Shine the Light on Sickle Cell Planning Committee

Zemoria Brandon

Sickle Cell Disease Association of America, Philadelphia/Delaware Valley Chapter (PA)

Chair, Outreach Subcommittee

Barbara Harrison

Sickle Cell Association of the National Capital Area (DC)

• Darlene Young, Sickle Cell Association of New Jersey (NJ)
• Judy Anderson, Sickle Cell Association, Inc. (VA)
• Angela Mercado, Candice’s Sickle Cell Fund Inc. (NY)

Chair, Public Relations Subcommittee

Judy Anderson

Sickle Cell Association (VA)

Co-Chairs, Social Media Subcommittee

Murine Lusakweno-Chandler

Sickle Cell Disease Association of America, Philadelphia/Delaware Valley Chapter (PA)

Isaiah Martin

Sickle Cell Disease Association of New Jersey (NJ)

• Teanika Hoffman, Sickle Cell Coalition of Maryland (MD)
• Sarahia Benn, Association for the Prevention of Sickle Cell Anemia, Harford and Cecil Counties and the Eastern Shore (MD)
• Alexandria Smith, HemoG.L.O.W.bin (DC)
• Karen Byer, SiNERGe CBO Coordinator (MD)

Social Media Consultant

Brand3 (MD)

Public Relations Consultant

ShinePR (PA)

There is no cost to participate in Shine the Light.

We do not collect money or fees in connection with Shine the Light.  Community-based and non-profit organizations are solely responsible for the events and activities that they organize to celebrate Shine the Light.  Please refer to the specific organization for details about the costs, if any, associated with their events or activities.

Anyone, and any type of business or organization, can participate in Shine the Light!  Take a look at the Community Gathering Guide for tips on how to join in.

Hosting a Shine the Light community gathering is easy … just follow these 5 steps:

1. Select … a program/activity/event
2. Prepare … for your gathering
3. Promote … your gathering
4. Hold … your gathering on June 19
5. Celebrate … your success

No registration is required to host a Shine the Light event.

But, we’d love to hear about it!  Tweet us @WEPSCF or post a note on the Shine the Light Facebook Event page.